I originally wrote this on 9/11/01… I, too, was stunned to hear the news this morning and continuing throughout the day. It was just something unbelievable. My husband and I were on a Land Rover 4X4 tour of the off-road areas of Barbados when we first got the news. At first, when we …
Category: Holidays
May 25
Today is Towel Day!
Each year, May 25 is Towel Day. Do you know why? Towel Day is celebrated every year on 25 May as a tribute to the author Douglas Adams by his fans. On this day, fans carry a towel with them, as described in Adams’ The Hitchhiker’s Guide to the Galaxy, to demonstrate their appreciation …
May 09
NED for 9 years!
NED stands for No Evidence of Disease Amazing! It’s Been 9 Years, Already. Today is the Ninth Anniversary of my kidney cancer surgery. These nine years have been bonus years for me. What were the odds I’d get kidney cancer? According to my “risk factors”, I “should” have had colon cancer because …
Cushing’s
- 🦓 Comment added to Day 14, Cushing’s Awareness ChallengeAnd then there were two…
- 🦓 Day 15, Cushing’s Awareness ChallengeToday’s Cushing’s Awareness Challenge post is about kidney cancer (renal cell carcinoma). You might wonder how in the world this is related to Cushing’s. I think it is, either directly or indirectly.
- 📰 Efficacy and Safety of Pasireotide in Patients With Cushing’s DiseasePasireotide is the first pituitary-directed approved therapy for Cushing’s disease (CD), effective in reducing 24 h urine free cortisol (UFC) > 50% in more than half of patients, with beneficial effects and with a relatively high incidence of hyperglycemia. The aim of this study was to evaluate efficacy and safety of long-term treatment with pasireotide (PAS) in CD […]
- 📅 Adrenal Insufficiency United’s Lunch & Learn, Los Angeles California, May 3Adrenal Insufficiency United’s Lunch & Learn Events are one day mini-conferences located in different cities in the USA. We find great local speakers to lead sessions and give presentations about issues affecting those with adrenal insufficiency. These one day events will be packed full of opportunities giving attendees more chances to ask questions, share their […]
- 📚 Comment on Surviving Cushing’s Disease: A Young Man’s JourneyI’m worse as I got gout two years ago in both knees and have lost excessive weight for no reason and doctors can’t find anything ..i thought I had addisons disease as have all the symptoms but endocrinologist checked me and said my cortisol levels were normal and everything was fine..Suffering from anxiety and depression […]
- 📚 Comment on Surviving Cushing’s Disease: A Young Man’s JourneyI’m so sorry you’re still suffering, Shagufta. I know what you mean, though. It didn’t take me as long as you – or the man in this book – to be diagnosed but I still have symptoms from before surgery and some issues from the surgery itself. I hope you’re at least somewhat better than […]
- 📚 Comment on Surviving Cushing’s Disease: A Young Man’s JourneyI’m still suffering from symptoms after 25 years of surgery and it took the doctors nearly 20 years to diagnose before 2004 when I had my surgery..So yes you are never cured from this illness it is with you for life
- ✍️ Add or update Your BioPlease add your bio. Your information will help others. If anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio?
- ℹ️ Cushing's Disease BasicsCushing's Disease is a rare condition caused by excessive production of cortisol, a hormone essential for various bodily functions. It is a specific form of Cushing's Syndrome, where the overproduction of cortisol is due to a tumor in the pituitary gland. The condition affects 10 to 15 people per million each year, predominantly women between […]
- ℹ️ Adrenal insufficiency BasicsAdrenal insufficiency is a condition where the adrenal glands don't produce enough of certain hormones, primarily cortisol and sometimes aldosterone. This disorder can be categorized into primary (Addison's disease) and secondary forms.
Music & Local Events
- 🐸 Spring Slime, TodayAre you getting ready to celebrate Halloween? Play with science and create your own ooey gooey slime!
- 🐸 Froggy Friends Scavenger Hunt, All AprilFrogs and toads are hop-hop-hoping around Children’s Section for the entire month of April! Find all 10 amphibians for a prize!
- 🧶 Fairfax Knitting, TuesdaysNovice or pro, join others who love to knit.
- 😎 Register for Vacation Bible School (VBS)For potty-trained three year olds through ninth graders. Embark on an exciting journey with Road Trip VBS, based on Joshua 1:9 – "The LORD your God is with you wherever you go." Discover God's presence everywhere as we explore new places, make new friends, and experience God's goodness together. Join us in a fun-filled adventure […]
- 🧐 Brain Power, All AprilEnhance your mental fitness with “Train Your Brain” activities! Sudoku, crosswords, Color Me Happy, and word searches. Each activity is aimed at stimulating cognitive function and supporting memory improvement.
- 📆 O'Connor Music Studio CalendarUpdated daily with music and Northern Virginia events.
- 📚 Toddler Storytime-Read with a Cop, April 16Join us for Early Literacy story time with stories, songs, and finger plays. Read by a police officer from the Fairfax County Police Department!
- 🪄 Fizz, Pop, Boom! with the Science Guys of Baltimore, April 17Learn about states of matter with the Science Guys of Baltimore! Dry Ice is the star of the show as we learn about sublimation and the other state changes. Watch the Science Guys show off bubbling potions, chemical reactions, and explosions!
- 🎬 Spring Break Cinema – Wicked, April 16Whether you’re a Good Witch or a Bad Witch, grab your broomsticks and your bubbles and sing along with us while we watch Wicked! (Rated-PG). All Ages.
- 🌼 Little Farmers Education – Daffodils, April 16Learn about these blooming bulbs and cut a few to take home to bring some spring sunshine inside.