Today I am thankful for naps, even longer than those on the chart above. Ever since my Cushing’s days in the early 1980’s, I’ve needed long daily naps – like 3 hours each – to get through the day. My endo says I’d have more energy if I took more Cortef, but when I …
Category: Thankfulness
Oct 16
Day 4: 40 Days of Thankfulness
I am so thankful for all my doctors but today I am thankful for Dr. Amir Al-Juburi who saved my life by removing my kidney cancer (renal cell carcinoma). In 2006 I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for the …
Oct 15
Day 3: 40 Days of Thankfulness
Today, since it’s a “teaching day”, I’m thankful for my piano studio, my students, and my piano 🙂 When I was growing up, my dad was a minister, meaning we lived in whatever parsonage the church chose to let us live in.  The one we had in Pawcatuck, CT had an upright piano …
Oct 14
Day 2: 40 Days of Thankfulness
Today, I’m thankful for my “Cushie Car”. Since I started attending Cushing’s events, I’ve always tried to rent a PT Cruiser. There’s just been something about them that I liked. A couple of years ago, after my son was out of school, I was getting tired of driving the Mom-Carpool-Van everywhere. I think my …
Nov 18
Giving Thanks, Day 33: November 18, 2017
Adapted from https://cushieblog.com/2010/11/22/40-days-of-thankfulness-days-thirty-one-to-thirty-five/ Today is the anniversary of my one and only zipline experience. I had been thinking about doing this since my kidney cancer surgery 3 years earlier.  I figured I had “extra years” and I wanted to do something kinda scary, yet fun. So, somehow, I decided on ziplining. All the following is …
Nov 12
Giving Thanks, Day 26: November 12, 2017
Our son Facetimed yesterday, just to chat. I am thankful that he’s doing so well for himself, has a wonderful fiance, has a good job, good friends, is a fine musician and that he’s not afraid to say he loves his parents. We love you, too!
Nov 11
Giving Thanks, Day 25: November 11, 2017
Giving thanks to our Veterans today I’m not sure how Veterans Day turned into a Friday holiday and a day to sell stuff, but then, most every holiday has turned into a day for stores to run “sales”. Â Possibly, the original intent was to give our veterans a break but it has sure morphed …
Music
- 11/17/24 – Webinar on Compounded Tirzepatide vs SemaglutideYOU’RE INVITED! Dr. Theodore Friedman (The Wiz) will be giving an updated webinar on compounded weight loss medicines. Topics to be discussed include: What is the difference between Tirzepatide and Semaglutide? Are compounded medications safe? Will they be discontinued? What are the side effects? How do they work with diet and exercise? Why is Dr. Friedman recommending compounded […]
- Tips for Living with Cushing’sTips for living with Cushing’s – before, during and after treatment. Please feel free to add your own tips here! Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control. For specific tips such as Getting […]
- Tips from Message Board MembersThings I’ve learned and wanted to share From Cushing’s Message Board members. This is a continuing list, if you want to share. I have learned so much on this Cushing’s journey, much of it from all of you and this site. I wanted to share those learnings, in the event that it helps anyone else. […]
- Adrenalectomy and BLA (Bilateral adrenalectomy)More about Treatments|Adrenalectomy and BLA (Bilateral adrenalectomy) Pain Some pain is normal after any surgery. Different people have different levels of sensitivity to pain. In general, you should experience a little less pain every day. Pain is usually worse in the evening when you are trying to go to sleep. Do not be afraid to […]
- Pituitary Post-Op by KateFrom Personal Stories-Kate, one week post op: [http://cushings.invisionzone.com/index.php?showtopic=19414 on the message boards] Hello, my dear friends, It is strange to be writing to you from the other side of surgery (well, at least this time somewhat coherently, as my prior post-op posts have been, let’s say, lubricated nicely by some very nice pain pills). It […]
- Pituitary GlandWhat is the Pituitary Gland? The pituitary gland is a small gland, located below the brain and connected to the hypothalamus. The pituitary gland regulates the secretions of hormones in the body, and hormones impact metabolism, growth and development, reproduction and urine production. It is important to note that the hypothalamus and pituitary gland are […]
- 11/2/24 – 13th Pituitary Patient Education DayWHEN: SATURDAY NOVEMBER 2ND 2024 WHERE: The Johns Hopkins Hospital Chevy Chase Conference Center, Zayed Tower 1800 Orleans St. Baltimore MD 21287. The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts. To RSVP, please email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If […]
- DefinitionsPlease note! This page is being moved from it’s original home so some of the links might not work. Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you’ll want to know. A B C D E F G H I J K L M N O […]
- SymptomsAching, sore joints, muscles and tendons. (may include such problems as carpal tunnel syndrome) Acne Anxiety, feeling ill at ease Anxiety, irritability Backaches, unexplained rib and spinal column fractures Below normal temperature Blurred vision Bone weakness leading to fractures Bone, joint and muscle aches, inflammation, and pains Breast tenderness Brisk reflexes Brittle fingernails, which peel […]
- Choosing the Optimal Approach for Giant Pituitary AdenomasGiant pituitary adenomas pose particular challenges for treatment. Advances in technology and understanding of the disease have greatly improved the management of these rare tumors. But experience and expertise are key to achieving optimal results. “The treatment options for giant pituitary adenomas have expanded,” says Richard W. Byrne, M.D., chair of Neurologic Surgery at Mayo Clinic […]
Little Free Library
- 11/17/24 – Webinar on Compounded Tirzepatide vs SemaglutideYOU’RE INVITED! Dr. Theodore Friedman (The Wiz) will be giving an updated webinar on compounded weight loss medicines. Topics to be discussed include: What is the difference between Tirzepatide and Semaglutide? Are compounded medications safe? Will they be discontinued? What are the side effects? How do they work with diet and exercise? Why is Dr. Friedman recommending compounded […]MaryO
- Tips for Living with Cushing’sTips for living with Cushing’s – before, during and after treatment. Please feel free to add your own tips here! Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control. For specific tips such as Getting […]MaryO
- Tips from Message Board MembersThings I’ve learned and wanted to share From Cushing’s Message Board members. This is a continuing list, if you want to share. I have learned so much on this Cushing’s journey, much of it from all of you and this site. I wanted to share those learnings, in the event that it helps anyone else. […]MaryO
- Adrenalectomy and BLA (Bilateral adrenalectomy)More about Treatments|Adrenalectomy and BLA (Bilateral adrenalectomy) Pain Some pain is normal after any surgery. Different people have different levels of sensitivity to pain. In general, you should experience a little less pain every day. Pain is usually worse in the evening when you are trying to go to sleep. Do not be afraid to […]MaryO
- Pituitary Post-Op by KateFrom Personal Stories-Kate, one week post op: [http://cushings.invisionzone.com/index.php?showtopic=19414 on the message boards] Hello, my dear friends, It is strange to be writing to you from the other side of surgery (well, at least this time somewhat coherently, as my prior post-op posts have been, let’s say, lubricated nicely by some very nice pain pills). It […]MaryO
- Pituitary GlandWhat is the Pituitary Gland? The pituitary gland is a small gland, located below the brain and connected to the hypothalamus. The pituitary gland regulates the secretions of hormones in the body, and hormones impact metabolism, growth and development, reproduction and urine production. It is important to note that the hypothalamus and pituitary gland are […]MaryO
- 11/2/24 – 13th Pituitary Patient Education DayWHEN: SATURDAY NOVEMBER 2ND 2024 WHERE: The Johns Hopkins Hospital Chevy Chase Conference Center, Zayed Tower 1800 Orleans St. Baltimore MD 21287. The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts. To RSVP, please email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If […]MaryO
- DefinitionsPlease note! This page is being moved from it’s original home so some of the links might not work. Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you’ll want to know. A B C D E F G H I J K L M N O […]MaryO
- SymptomsAching, sore joints, muscles and tendons. (may include such problems as carpal tunnel syndrome) Acne Anxiety, feeling ill at ease Anxiety, irritability Backaches, unexplained rib and spinal column fractures Below normal temperature Blurred vision Bone weakness leading to fractures Bone, joint and muscle aches, inflammation, and pains Breast tenderness Brisk reflexes Brittle fingernails, which peel […]MaryO
- Choosing the Optimal Approach for Giant Pituitary AdenomasGiant pituitary adenomas pose particular challenges for treatment. Advances in technology and understanding of the disease have greatly improved the management of these rare tumors. But experience and expertise are key to achieving optimal results. “The treatment options for giant pituitary adenomas have expanded,” says Richard W. Byrne, M.D., chair of Neurologic Surgery at Mayo Clinic […]MaryO