NED stands for No Evidence of Disease Amazing! It’s Been 14 Years, Already. Today is the fourteenth anniversary of my kidney cancer surgery. These fourteen years have been bonus years for me. What were the odds I’d get kidney cancer? According to my “risk factors”, I “should” have had colon cancer because both parents and …
Category: Thoughts
Jan 05
Red Hackle Day
Today is Red Hackle Day. This annual celebration on 5 January commemorates the award to The Black Watch of the right to wear the Red Hackle. Originally thought to be as a reward for their achievement at the Battle of Geldermaisen in 1794, in fact there is evidence to show that the Red Hackle was worn by …
Nov 11
Giving Thanks on Veterans: November 11, 2019
Giving thanks to our Veterans today I’m not sure how Veterans Day turned into a Monday holiday and a day to sell stuff, but then, most every holiday has turned into a day for stores to run “sales”. Possibly, the original intent was to give our veterans a break but it has sure morphed away …
Oct 22
40 Days of Thankfulness: Day 10
This is going to sound really stupid but today I am thankful for my dropbox. I have files all over the place and I work on them on different computers (PC and Mac), at home or at work, on my iPhone, iPad and other places. If I’m away from home without any files (rarely happens!) I …
Oct 14
40 Days of Thankfulness: Day Two
Today, I’m thankful for my “Cushie Car”. Since I started attending Cushing’s events, I’ve always tried to rent a PT Cruiser. There’s just been something about them that I liked. A couple of years ago, after my son was out of school, I was getting tired of driving the Mom-Carpool-Van everywhere. I think my …
May 11
Father Goose?
I don’t know why geese fascinate me but they have for years. I love how the father stands watch over the family-to-be and when they’re crossing the street – mom in front, babies, then dad. Lately, I’ve been seeing goose families everywhere. When I went to an appointment last week, I noticed a goose family …
May 09
NED for 13 years!
NED stands for No Evidence of Disease Amazing! It’s Been 13 Years, Already. Today is the Thirteenth Anniversary of my kidney cancer surgery. These thirteen years have been bonus years for me. What were the odds I’d get kidney cancer? According to my “risk factors”, I “should” have had colon cancer because both parents and …
Mar 16
It Started With a Train
I was reading this great article at https://www.thrillist.com/travel/nation/best-scenic-train-rides-us?wpsrc=thrillist and saw that the header image was a train we were on in 2007, the White Pass & Yukon Route out of Skagway, Alaska. The Thrillist folks said “As you cruise along the side of frighteningly sheer cliff-drops on this narrow-gauge railway, you can’t help but wonder who in …
Music
- 11/17/24 – Webinar on Compounded Tirzepatide vs SemaglutideYOU’RE INVITED! Dr. Theodore Friedman (The Wiz) will be giving an updated webinar on compounded weight loss medicines. Topics to be discussed include: What is the difference between Tirzepatide and Semaglutide? Are compounded medications safe? Will they be discontinued? What are the side effects? How do they work with diet and exercise? Why is Dr. Friedman recommending compounded […]
- Tips for Living with Cushing’sTips for living with Cushing’s – before, during and after treatment. Please feel free to add your own tips here! Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control. For specific tips such as Getting […]
- Tips from Message Board MembersThings I’ve learned and wanted to share From Cushing’s Message Board members. This is a continuing list, if you want to share. I have learned so much on this Cushing’s journey, much of it from all of you and this site. I wanted to share those learnings, in the event that it helps anyone else. […]
- Adrenalectomy and BLA (Bilateral adrenalectomy)More about Treatments|Adrenalectomy and BLA (Bilateral adrenalectomy) Pain Some pain is normal after any surgery. Different people have different levels of sensitivity to pain. In general, you should experience a little less pain every day. Pain is usually worse in the evening when you are trying to go to sleep. Do not be afraid to […]
- Pituitary Post-Op by KateFrom Personal Stories-Kate, one week post op: [http://cushings.invisionzone.com/index.php?showtopic=19414 on the message boards] Hello, my dear friends, It is strange to be writing to you from the other side of surgery (well, at least this time somewhat coherently, as my prior post-op posts have been, let’s say, lubricated nicely by some very nice pain pills). It […]
- Pituitary GlandWhat is the Pituitary Gland? The pituitary gland is a small gland, located below the brain and connected to the hypothalamus. The pituitary gland regulates the secretions of hormones in the body, and hormones impact metabolism, growth and development, reproduction and urine production. It is important to note that the hypothalamus and pituitary gland are […]
- 11/2/24 – 13th Pituitary Patient Education DayWHEN: SATURDAY NOVEMBER 2ND 2024 WHERE: The Johns Hopkins Hospital Chevy Chase Conference Center, Zayed Tower 1800 Orleans St. Baltimore MD 21287. The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts. To RSVP, please email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If […]
- DefinitionsPlease note! This page is being moved from it’s original home so some of the links might not work. Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you’ll want to know. A B C D E F G H I J K L M N O […]
- SymptomsAching, sore joints, muscles and tendons. (may include such problems as carpal tunnel syndrome) Acne Anxiety, feeling ill at ease Anxiety, irritability Backaches, unexplained rib and spinal column fractures Below normal temperature Blurred vision Bone weakness leading to fractures Bone, joint and muscle aches, inflammation, and pains Breast tenderness Brisk reflexes Brittle fingernails, which peel […]
- Choosing the Optimal Approach for Giant Pituitary AdenomasGiant pituitary adenomas pose particular challenges for treatment. Advances in technology and understanding of the disease have greatly improved the management of these rare tumors. But experience and expertise are key to achieving optimal results. “The treatment options for giant pituitary adenomas have expanded,” says Richard W. Byrne, M.D., chair of Neurologic Surgery at Mayo Clinic […]
Little Free Library
- 11/17/24 – Webinar on Compounded Tirzepatide vs SemaglutideYOU’RE INVITED! Dr. Theodore Friedman (The Wiz) will be giving an updated webinar on compounded weight loss medicines. Topics to be discussed include: What is the difference between Tirzepatide and Semaglutide? Are compounded medications safe? Will they be discontinued? What are the side effects? How do they work with diet and exercise? Why is Dr. Friedman recommending compounded […]MaryO
- Tips for Living with Cushing’sTips for living with Cushing’s – before, during and after treatment. Please feel free to add your own tips here! Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control. For specific tips such as Getting […]MaryO
- Tips from Message Board MembersThings I’ve learned and wanted to share From Cushing’s Message Board members. This is a continuing list, if you want to share. I have learned so much on this Cushing’s journey, much of it from all of you and this site. I wanted to share those learnings, in the event that it helps anyone else. […]MaryO
- Adrenalectomy and BLA (Bilateral adrenalectomy)More about Treatments|Adrenalectomy and BLA (Bilateral adrenalectomy) Pain Some pain is normal after any surgery. Different people have different levels of sensitivity to pain. In general, you should experience a little less pain every day. Pain is usually worse in the evening when you are trying to go to sleep. Do not be afraid to […]MaryO
- Pituitary Post-Op by KateFrom Personal Stories-Kate, one week post op: [http://cushings.invisionzone.com/index.php?showtopic=19414 on the message boards] Hello, my dear friends, It is strange to be writing to you from the other side of surgery (well, at least this time somewhat coherently, as my prior post-op posts have been, let’s say, lubricated nicely by some very nice pain pills). It […]MaryO
- Pituitary GlandWhat is the Pituitary Gland? The pituitary gland is a small gland, located below the brain and connected to the hypothalamus. The pituitary gland regulates the secretions of hormones in the body, and hormones impact metabolism, growth and development, reproduction and urine production. It is important to note that the hypothalamus and pituitary gland are […]MaryO
- 11/2/24 – 13th Pituitary Patient Education DayWHEN: SATURDAY NOVEMBER 2ND 2024 WHERE: The Johns Hopkins Hospital Chevy Chase Conference Center, Zayed Tower 1800 Orleans St. Baltimore MD 21287. The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts. To RSVP, please email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If […]MaryO
- DefinitionsPlease note! This page is being moved from it’s original home so some of the links might not work. Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you’ll want to know. A B C D E F G H I J K L M N O […]MaryO
- SymptomsAching, sore joints, muscles and tendons. (may include such problems as carpal tunnel syndrome) Acne Anxiety, feeling ill at ease Anxiety, irritability Backaches, unexplained rib and spinal column fractures Below normal temperature Blurred vision Bone weakness leading to fractures Bone, joint and muscle aches, inflammation, and pains Breast tenderness Brisk reflexes Brittle fingernails, which peel […]MaryO
- Choosing the Optimal Approach for Giant Pituitary AdenomasGiant pituitary adenomas pose particular challenges for treatment. Advances in technology and understanding of the disease have greatly improved the management of these rare tumors. But experience and expertise are key to achieving optimal results. “The treatment options for giant pituitary adenomas have expanded,” says Richard W. Byrne, M.D., chair of Neurologic Surgery at Mayo Clinic […]MaryO