November 3 was the 36th anniversary of my pituitary surgery at NIH. As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web. My Cushing’s has been in remission for most of these 36 years. …
Tag: cortisone
Nov 20
Giving Thanks, Day 20
- By MaryO in Giving Thanks, Interesting stuff, Memories
- Adrenal insufficiency, circus, Cortef, cortisone, Cushing's Help and Support boards, Cushing's syndrome, Dr. Ed Oldfield, endocrinologist, Giving Thanks, growth hormone, Harvey Cushing, kidney cancer, knee issues, lymph nodes, message board, National Institutes of Health, neurosurgeon, NIH, pituitary, pituitary surgery, remission, renal cell carcinoma, Ringling Brothers, success
Nov 03
Day 22: 40 Days of Thankfulness
- By MaryO in Giving Thanks, Memories, Thankfulness
Today is the 31st anniversary of my pituitary surgery at NIH. As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web. My Cushing’s has been in remission for most of these 31 years. Due …
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- Adrenal insufficiency, blackberries, circus, Cortef, cortisone, cortisone shot, Cushing's Help and Support boards, Cushing's syndrome, Dr. Ed Oldfield, endocrinologist, Giving Thanks, growth hormone, Harvey Cushing, Kenalog, kidney cancer, knee issues, lymph nodes, message board, National Institutes of Health, nephrectomy, neurosurgeon, NIH, pituitary, pituitary surgery, Prednisone, remission, renal cell carcinoma, Ringling Brothers, success, Thankful
May 06
The Shell You Say
- By MaryO in Interesting stuff, Memories
This is from last year but I still won’t go back… I needed gas for my car last week. I was on my way to bell rehearsal so I didn’t have time to go to my usual place. Instead, I stopped by the station that was on my way. I had stopped going to …
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Nov 03
Giving Thanks, Day 17: November 3, 2017
- By MaryO in Giving Thanks, Memories, Thankfulness
Today is the 30th anniversary of my pituitary surgery at NIH. As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web. My Cushing’s has been in remission for most of these 30 years. Due …
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- Adrenal insufficiency, circus, Cortef, cortisone, Cushing's Help and Support boards, Cushing's syndrome, Dr. Ed Oldfield, endocrinologist, Giving Thanks, growth hormone, Harvey Cushing, kidney cancer, knee issues, lymph nodes, message board, National Institutes of Health, neurosurgeon, NIH, pituitary, pituitary surgery, remission, renal cell carcinoma, Ringling Brothers, success, Thankful
May 05
A Shell of a Day
- By MaryO in Interesting stuff
I needed gas for my car last week. I was on my way to bell rehearsal so I didn’t have time to go to my usual place. Instead, I stopped by the station that was on my way. I had stopped going to this particular gas station many years ago when I thought that …
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- Adrenalectomy and BLA (Bilateral adrenalectomy)More about Treatments|Adrenalectomy and BLA (Bilateral adrenalectomy) Pain Some pain is normal after any surgery. Different people have different levels of sensitivity to pain. In general, you should experience a little less pain every day. Pain is usually worse in the evening when you are trying to go to sleep. Do not be afraid to […]
- Pituitary Post-Op by KateFrom Personal Stories-Kate, one week post op: [http://cushings.invisionzone.com/index.php?showtopic=19414 on the message boards] Hello, my dear friends, It is strange to be writing to you from the other side of surgery (well, at least this time somewhat coherently, as my prior post-op posts have been, let’s say, lubricated nicely by some very nice pain pills). It […]
- Pituitary GlandWhat is the Pituitary Gland? The pituitary gland is a small gland, located below the brain and connected to the hypothalamus. The pituitary gland regulates the secretions of hormones in the body, and hormones impact metabolism, growth and development, reproduction and urine production. It is important to note that the hypothalamus and pituitary gland are […]
- 11/2/24 – 13th Pituitary Patient Education DayWHEN: SATURDAY NOVEMBER 2ND 2024 WHERE: The Johns Hopkins Hospital Chevy Chase Conference Center, Zayed Tower 1800 Orleans St. Baltimore MD 21287. The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts. To RSVP, please email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If […]
- DefinitionsPlease note! This page is being moved from it’s original home so some of the links might not work. Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you’ll want to know. A B C D E F G H I J K L M N O […]
- SymptomsAching, sore joints, muscles and tendons. (may include such problems as carpal tunnel syndrome) Acne Anxiety, feeling ill at ease Anxiety, irritability Backaches, unexplained rib and spinal column fractures Below normal temperature Blurred vision Bone weakness leading to fractures Bone, joint and muscle aches, inflammation, and pains Breast tenderness Brisk reflexes Brittle fingernails, which peel […]
- Choosing the Optimal Approach for Giant Pituitary AdenomasGiant pituitary adenomas pose particular challenges for treatment. Advances in technology and understanding of the disease have greatly improved the management of these rare tumors. But experience and expertise are key to achieving optimal results. “The treatment options for giant pituitary adenomas have expanded,” says Richard W. Byrne, M.D., chair of Neurologic Surgery at Mayo Clinic […]
- Rare Patient Voice Current Studies, July 2024Here’s your chance to make your voice heard on your health Issues. We have hundreds of studies open for patients and caregivers! Some of the studies we are working to fill immediately are listed below. 1. If you are already a member of Rare Patient Voice and want to be considered for a study listed […]
- Cushing’s SymptomsSo, these are only seven of the many, many symptoms of Cushing’s. I had those above – and I often felt like I looked like one of those little bearded dwarves. Cushing’s affects every part of the body. It’s not like when I had kidney cancer and only the kidney was affected. Here are some […]
- All our Cushing’s-related SitesCushing’s-related sites: Addison’s Help Addison’s Help (Blog) Addison’s knol Adrenal Crisis (Facebook) Adrenal Insufficiency Virginia (Facebook) Cushing’s and Addison’s Documents Cushing’s Help Message Boards Cushing’s News Feed Cushie Blogger, mostly used for Cushing’s Awareness Posts and meeting information Cushie Bloggers (Blog) Cushing’s and Addison’s Documents Cushing’s and Cancer (Blog) Cushing’s Bios Cushing’s Help Cushing’s Help and Support […]
Little Free Library
- Adrenalectomy and BLA (Bilateral adrenalectomy)More about Treatments|Adrenalectomy and BLA (Bilateral adrenalectomy) Pain Some pain is normal after any surgery. Different people have different levels of sensitivity to pain. In general, you should experience a little less pain every day. Pain is usually worse in the evening when you are trying to go to sleep. Do not be afraid to […]MaryO
- Pituitary Post-Op by KateFrom Personal Stories-Kate, one week post op: [http://cushings.invisionzone.com/index.php?showtopic=19414 on the message boards] Hello, my dear friends, It is strange to be writing to you from the other side of surgery (well, at least this time somewhat coherently, as my prior post-op posts have been, let’s say, lubricated nicely by some very nice pain pills). It […]MaryO
- Pituitary GlandWhat is the Pituitary Gland? The pituitary gland is a small gland, located below the brain and connected to the hypothalamus. The pituitary gland regulates the secretions of hormones in the body, and hormones impact metabolism, growth and development, reproduction and urine production. It is important to note that the hypothalamus and pituitary gland are […]MaryO
- 11/2/24 – 13th Pituitary Patient Education DayWHEN: SATURDAY NOVEMBER 2ND 2024 WHERE: The Johns Hopkins Hospital Chevy Chase Conference Center, Zayed Tower 1800 Orleans St. Baltimore MD 21287. The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts. To RSVP, please email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If […]MaryO
- DefinitionsPlease note! This page is being moved from it’s original home so some of the links might not work. Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you’ll want to know. A B C D E F G H I J K L M N O […]MaryO
- SymptomsAching, sore joints, muscles and tendons. (may include such problems as carpal tunnel syndrome) Acne Anxiety, feeling ill at ease Anxiety, irritability Backaches, unexplained rib and spinal column fractures Below normal temperature Blurred vision Bone weakness leading to fractures Bone, joint and muscle aches, inflammation, and pains Breast tenderness Brisk reflexes Brittle fingernails, which peel […]MaryO
- Choosing the Optimal Approach for Giant Pituitary AdenomasGiant pituitary adenomas pose particular challenges for treatment. Advances in technology and understanding of the disease have greatly improved the management of these rare tumors. But experience and expertise are key to achieving optimal results. “The treatment options for giant pituitary adenomas have expanded,” says Richard W. Byrne, M.D., chair of Neurologic Surgery at Mayo Clinic […]MaryO
- Rare Patient Voice Current Studies, July 2024Here’s your chance to make your voice heard on your health Issues. We have hundreds of studies open for patients and caregivers! Some of the studies we are working to fill immediately are listed below. 1. If you are already a member of Rare Patient Voice and want to be considered for a study listed […]MaryO
- Cushing’s SymptomsSo, these are only seven of the many, many symptoms of Cushing’s. I had those above – and I often felt like I looked like one of those little bearded dwarves. Cushing’s affects every part of the body. It’s not like when I had kidney cancer and only the kidney was affected. Here are some […]MaryO
- All our Cushing’s-related SitesCushing’s-related sites: Addison’s Help Addison’s Help (Blog) Addison’s knol Adrenal Crisis (Facebook) Adrenal Insufficiency Virginia (Facebook) Cushing’s and Addison’s Documents Cushing’s Help Message Boards Cushing’s News Feed Cushie Blogger, mostly used for Cushing’s Awareness Posts and meeting information Cushie Bloggers (Blog) Cushing’s and Addison’s Documents Cushing’s and Cancer (Blog) Cushing’s Bios Cushing’s Help Cushing’s Help and Support […]MaryO