I was reading this great article at https://www.thrillist.com/travel/nation/best-scenic-train-rides-us?wpsrc=thrillist and saw that the header image was a train we were on in 2007, the White Pass & Yukon Route out of Skagway, Alaska. The Thrillist folks said “As you cruise along the side of frighteningly sheer cliff-drops on this narrow-gauge railway, you can’t help but wonder who in …
Tag: cruise
May 09
NED for 14 years!
NED stands for No Evidence of Disease Amazing! It’s Been 14 Years, Already. Today is the fourteenth anniversary of my kidney cancer surgery. These fourteen years have been bonus years for me. What were the odds I’d get kidney cancer? According to my “risk factors”, I “should” have had colon cancer because both parents and …
May 09
NED for 13 years!
NED stands for No Evidence of Disease Amazing! It’s Been 13 Years, Already. Today is the Thirteenth Anniversary of my kidney cancer surgery. These thirteen years have been bonus years for me. What were the odds I’d get kidney cancer? According to my “risk factors”, I “should” have had colon cancer because both parents and …
Mar 16
It Started With a Train
I was reading this great article at https://www.thrillist.com/travel/nation/best-scenic-train-rides-us?wpsrc=thrillist and saw that the header image was a train we were on in 2007, the White Pass & Yukon Route out of Skagway, Alaska. The Thrillist folks said “As you cruise along the side of frighteningly sheer cliff-drops on this narrow-gauge railway, you can’t help but wonder who in …
Mar 29
Train of Thought
I was reading this great article at https://www.thrillist.com/travel/nation/best-scenic-train-rides-us?wpsrc=thrillist and saw that the header image was a train we were on in 2007, the White Pass & Yukon Route out of Skagway, Alaska. The Thrillist folks said “As you cruise along the side of frighteningly sheer cliff-drops on this narrow-gauge railway, you can’t help but wonder who in …
Mar 16
It All Started With a Train
I was reading this great article at https://www.thrillist.com/travel/nation/best-scenic-train-rides-us?wpsrc=thrillist and saw that the header image was a train we were on in 2007, the White Pass & Yukon Route out of Skagway, Alaska. The Thrillist folks said “As you cruise along the side of frighteningly sheer cliff-drops on this narrow-gauge railway, you can’t help but wonder who in …
May 09
NED for 9 years!
NED stands for No Evidence of Disease Amazing! It’s Been 9 Years, Already. Today is the Ninth Anniversary of my kidney cancer surgery. These nine years have been bonus years for me. What were the odds I’d get kidney cancer? According to my “risk factors”, I “should” have had colon cancer because …
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- Adrenalectomy and BLA (Bilateral adrenalectomy)More about Treatments|Adrenalectomy and BLA (Bilateral adrenalectomy) Pain Some pain is normal after any surgery. Different people have different levels of sensitivity to pain. In general, you should experience a little less pain every day. Pain is usually worse in the evening when you are trying to go to sleep. Do not be afraid to […]
- Pituitary Post-Op by KateFrom Personal Stories-Kate, one week post op: [http://cushings.invisionzone.com/index.php?showtopic=19414 on the message boards] Hello, my dear friends, It is strange to be writing to you from the other side of surgery (well, at least this time somewhat coherently, as my prior post-op posts have been, let’s say, lubricated nicely by some very nice pain pills). It […]
- Pituitary GlandWhat is the Pituitary Gland? The pituitary gland is a small gland, located below the brain and connected to the hypothalamus. The pituitary gland regulates the secretions of hormones in the body, and hormones impact metabolism, growth and development, reproduction and urine production. It is important to note that the hypothalamus and pituitary gland are […]
- 11/2/24 – 13th Pituitary Patient Education DayWHEN: SATURDAY NOVEMBER 2ND 2024 WHERE: The Johns Hopkins Hospital Chevy Chase Conference Center, Zayed Tower 1800 Orleans St. Baltimore MD 21287. The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts. To RSVP, please email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If […]
- DefinitionsPlease note! This page is being moved from it’s original home so some of the links might not work. Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you’ll want to know. A B C D E F G H I J K L M N O […]
- SymptomsAching, sore joints, muscles and tendons. (may include such problems as carpal tunnel syndrome) Acne Anxiety, feeling ill at ease Anxiety, irritability Backaches, unexplained rib and spinal column fractures Below normal temperature Blurred vision Bone weakness leading to fractures Bone, joint and muscle aches, inflammation, and pains Breast tenderness Brisk reflexes Brittle fingernails, which peel […]
- Choosing the Optimal Approach for Giant Pituitary AdenomasGiant pituitary adenomas pose particular challenges for treatment. Advances in technology and understanding of the disease have greatly improved the management of these rare tumors. But experience and expertise are key to achieving optimal results. “The treatment options for giant pituitary adenomas have expanded,” says Richard W. Byrne, M.D., chair of Neurologic Surgery at Mayo Clinic […]
- Rare Patient Voice Current Studies, July 2024Here’s your chance to make your voice heard on your health Issues. We have hundreds of studies open for patients and caregivers! Some of the studies we are working to fill immediately are listed below. 1. If you are already a member of Rare Patient Voice and want to be considered for a study listed […]
- Cushing’s SymptomsSo, these are only seven of the many, many symptoms of Cushing’s. I had those above – and I often felt like I looked like one of those little bearded dwarves. Cushing’s affects every part of the body. It’s not like when I had kidney cancer and only the kidney was affected. Here are some […]
- All our Cushing’s-related SitesCushing’s-related sites: Addison’s Help Addison’s Help (Blog) Addison’s knol Adrenal Crisis (Facebook) Adrenal Insufficiency Virginia (Facebook) Cushing’s and Addison’s Documents Cushing’s Help Message Boards Cushing’s News Feed Cushie Blogger, mostly used for Cushing’s Awareness Posts and meeting information Cushie Bloggers (Blog) Cushing’s and Addison’s Documents Cushing’s and Cancer (Blog) Cushing’s Bios Cushing’s Help Cushing’s Help and Support […]
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- Adrenalectomy and BLA (Bilateral adrenalectomy)More about Treatments|Adrenalectomy and BLA (Bilateral adrenalectomy) Pain Some pain is normal after any surgery. Different people have different levels of sensitivity to pain. In general, you should experience a little less pain every day. Pain is usually worse in the evening when you are trying to go to sleep. Do not be afraid to […]MaryO
- Pituitary Post-Op by KateFrom Personal Stories-Kate, one week post op: [http://cushings.invisionzone.com/index.php?showtopic=19414 on the message boards] Hello, my dear friends, It is strange to be writing to you from the other side of surgery (well, at least this time somewhat coherently, as my prior post-op posts have been, let’s say, lubricated nicely by some very nice pain pills). It […]MaryO
- Pituitary GlandWhat is the Pituitary Gland? The pituitary gland is a small gland, located below the brain and connected to the hypothalamus. The pituitary gland regulates the secretions of hormones in the body, and hormones impact metabolism, growth and development, reproduction and urine production. It is important to note that the hypothalamus and pituitary gland are […]MaryO
- 11/2/24 – 13th Pituitary Patient Education DayWHEN: SATURDAY NOVEMBER 2ND 2024 WHERE: The Johns Hopkins Hospital Chevy Chase Conference Center, Zayed Tower 1800 Orleans St. Baltimore MD 21287. The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts. To RSVP, please email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If […]MaryO
- DefinitionsPlease note! This page is being moved from it’s original home so some of the links might not work. Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you’ll want to know. A B C D E F G H I J K L M N O […]MaryO
- SymptomsAching, sore joints, muscles and tendons. (may include such problems as carpal tunnel syndrome) Acne Anxiety, feeling ill at ease Anxiety, irritability Backaches, unexplained rib and spinal column fractures Below normal temperature Blurred vision Bone weakness leading to fractures Bone, joint and muscle aches, inflammation, and pains Breast tenderness Brisk reflexes Brittle fingernails, which peel […]MaryO
- Choosing the Optimal Approach for Giant Pituitary AdenomasGiant pituitary adenomas pose particular challenges for treatment. Advances in technology and understanding of the disease have greatly improved the management of these rare tumors. But experience and expertise are key to achieving optimal results. “The treatment options for giant pituitary adenomas have expanded,” says Richard W. Byrne, M.D., chair of Neurologic Surgery at Mayo Clinic […]MaryO
- Rare Patient Voice Current Studies, July 2024Here’s your chance to make your voice heard on your health Issues. We have hundreds of studies open for patients and caregivers! Some of the studies we are working to fill immediately are listed below. 1. If you are already a member of Rare Patient Voice and want to be considered for a study listed […]MaryO
- Cushing’s SymptomsSo, these are only seven of the many, many symptoms of Cushing’s. I had those above – and I often felt like I looked like one of those little bearded dwarves. Cushing’s affects every part of the body. It’s not like when I had kidney cancer and only the kidney was affected. Here are some […]MaryO
- All our Cushing’s-related SitesCushing’s-related sites: Addison’s Help Addison’s Help (Blog) Addison’s knol Adrenal Crisis (Facebook) Adrenal Insufficiency Virginia (Facebook) Cushing’s and Addison’s Documents Cushing’s Help Message Boards Cushing’s News Feed Cushie Blogger, mostly used for Cushing’s Awareness Posts and meeting information Cushie Bloggers (Blog) Cushing’s and Addison’s Documents Cushing’s and Cancer (Blog) Cushing’s Bios Cushing’s Help Cushing’s Help and Support […]MaryO