From last year… Today, I give thanks and shed a more than a few tears for a wonderful friend, co-worker, choir buddy, special person to everyone he met. I’m so thankful I got to sing in the choir honoring Tim – and I’m very thankful that this Celebration of Life was live-streamed on …
Tag: Giving Thanks
Nov 04
Day 23: 40 Days of Thankfulness
Our son Facetimes most every Sunday, just to chat. I am thankful that he’s doing so well for himself, has a wonderful new wife, has a good job, good friends, is a fine musician and that he’s not afraid to say he loves his parents. We love you, too!
Nov 03
Day 22: 40 Days of Thankfulness
Today is the 31st anniversary of my pituitary surgery at NIH. As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web. My Cushing’s has been in remission for most of these 31 years. Due …
Nov 02
Day 21: 40 Days of Thankfulness
Today I’m so thankful for OakMarr and its swimming pool! Most Mondays, Wednesdays and Fridays I go to water excercise classes there. There is a different instructor each day which was weird at first but I like it now because they all teach different exercises. One of my favorite instructors is actually a sub, …
Nov 01
Day 20: 40 Days of Thankfulness
I hope I’m not jinxing myself but today I am thankful that I haven’t had any migraines for a while. It’s not “just” not having migraines, but the fact that, should I get one, there’s nothing I can do about them anymore. I used to get migraines quite often, a hormone thing probably. …
Oct 31
Day 19: 40 Days of Thankfulness
Today I am thankful for my dog, Mimi. She’s a beautiful dog, sweet, loving and usually very mild-mannered, but she’ll bark her head off whenever she hears someone in the driveway. Tonight, she barked at potential trick-or-treaters and we have lots of candy left over. Thanks, Mimi!
Oct 30
Day 18: 40 Days of Thankfulness
Adapted from https://cushieblog.com/2010/11/22/40-days-of-thankfulness-days-thirty-one-to-thirty-five/ Today is the anniversary of my one and only zipline experience. I had been thinking about doing this since my kidney cancer surgery 3 years earlier. I figured I had “extra years” and I wanted to do something kinda scary, yet fun. So, somehow, I decided on ziplining. All the following is …
Oct 29
Day 17: 40 Days of Thankfulness
Our son Facetimed Sunday, just to chat. I am thankful that he’s doing so well for himself, has a wonderful new wife, has a good job, good friends, is a fine musician and that he’s not afraid to say he loves his parents. We love you, too!
Oct 28
Day 16: 40 Days of Thankfulness
Today I am thankful for my church choir. Last year at this time, the “low voice choir” formerly the Men’s Choir sang this: I’ve had a long history with singing from the time I was a kid singing in the choir at my Dad’s church in Springfield, Mass. In High School we …
Oct 26
Day 14: 40 Days of Thankfulness
I am thankful, believe it or not, that I had Cushing’s. Mind you, I wouldn’t want to have it now, although diagnoses and surgeries seem “easier” now. Having Cushing’s taught me a lot, including how to stick up for myself, how to read medical books to learn more about my disease, how to do …
Music
- 11/17/24 – Webinar on Compounded Tirzepatide vs SemaglutideYOU’RE INVITED! Dr. Theodore Friedman (The Wiz) will be giving an updated webinar on compounded weight loss medicines. Topics to be discussed include: What is the difference between Tirzepatide and Semaglutide? Are compounded medications safe? Will they be discontinued? What are the side effects? How do they work with diet and exercise? Why is Dr. Friedman recommending compounded […]
- Tips for Living with Cushing’sTips for living with Cushing’s – before, during and after treatment. Please feel free to add your own tips here! Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control. For specific tips such as Getting […]
- Tips from Message Board MembersThings I’ve learned and wanted to share From Cushing’s Message Board members. This is a continuing list, if you want to share. I have learned so much on this Cushing’s journey, much of it from all of you and this site. I wanted to share those learnings, in the event that it helps anyone else. […]
- Adrenalectomy and BLA (Bilateral adrenalectomy)More about Treatments|Adrenalectomy and BLA (Bilateral adrenalectomy) Pain Some pain is normal after any surgery. Different people have different levels of sensitivity to pain. In general, you should experience a little less pain every day. Pain is usually worse in the evening when you are trying to go to sleep. Do not be afraid to […]
- Pituitary Post-Op by KateFrom Personal Stories-Kate, one week post op: [http://cushings.invisionzone.com/index.php?showtopic=19414 on the message boards] Hello, my dear friends, It is strange to be writing to you from the other side of surgery (well, at least this time somewhat coherently, as my prior post-op posts have been, let’s say, lubricated nicely by some very nice pain pills). It […]
- Pituitary GlandWhat is the Pituitary Gland? The pituitary gland is a small gland, located below the brain and connected to the hypothalamus. The pituitary gland regulates the secretions of hormones in the body, and hormones impact metabolism, growth and development, reproduction and urine production. It is important to note that the hypothalamus and pituitary gland are […]
- 11/2/24 – 13th Pituitary Patient Education DayWHEN: SATURDAY NOVEMBER 2ND 2024 WHERE: The Johns Hopkins Hospital Chevy Chase Conference Center, Zayed Tower 1800 Orleans St. Baltimore MD 21287. The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts. To RSVP, please email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If […]
- DefinitionsPlease note! This page is being moved from it’s original home so some of the links might not work. Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you’ll want to know. A B C D E F G H I J K L M N O […]
- SymptomsAching, sore joints, muscles and tendons. (may include such problems as carpal tunnel syndrome) Acne Anxiety, feeling ill at ease Anxiety, irritability Backaches, unexplained rib and spinal column fractures Below normal temperature Blurred vision Bone weakness leading to fractures Bone, joint and muscle aches, inflammation, and pains Breast tenderness Brisk reflexes Brittle fingernails, which peel […]
- Choosing the Optimal Approach for Giant Pituitary AdenomasGiant pituitary adenomas pose particular challenges for treatment. Advances in technology and understanding of the disease have greatly improved the management of these rare tumors. But experience and expertise are key to achieving optimal results. “The treatment options for giant pituitary adenomas have expanded,” says Richard W. Byrne, M.D., chair of Neurologic Surgery at Mayo Clinic […]
Little Free Library
- 11/17/24 – Webinar on Compounded Tirzepatide vs SemaglutideYOU’RE INVITED! Dr. Theodore Friedman (The Wiz) will be giving an updated webinar on compounded weight loss medicines. Topics to be discussed include: What is the difference between Tirzepatide and Semaglutide? Are compounded medications safe? Will they be discontinued? What are the side effects? How do they work with diet and exercise? Why is Dr. Friedman recommending compounded […]MaryO
- Tips for Living with Cushing’sTips for living with Cushing’s – before, during and after treatment. Please feel free to add your own tips here! Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control. For specific tips such as Getting […]MaryO
- Tips from Message Board MembersThings I’ve learned and wanted to share From Cushing’s Message Board members. This is a continuing list, if you want to share. I have learned so much on this Cushing’s journey, much of it from all of you and this site. I wanted to share those learnings, in the event that it helps anyone else. […]MaryO
- Adrenalectomy and BLA (Bilateral adrenalectomy)More about Treatments|Adrenalectomy and BLA (Bilateral adrenalectomy) Pain Some pain is normal after any surgery. Different people have different levels of sensitivity to pain. In general, you should experience a little less pain every day. Pain is usually worse in the evening when you are trying to go to sleep. Do not be afraid to […]MaryO
- Pituitary Post-Op by KateFrom Personal Stories-Kate, one week post op: [http://cushings.invisionzone.com/index.php?showtopic=19414 on the message boards] Hello, my dear friends, It is strange to be writing to you from the other side of surgery (well, at least this time somewhat coherently, as my prior post-op posts have been, let’s say, lubricated nicely by some very nice pain pills). It […]MaryO
- Pituitary GlandWhat is the Pituitary Gland? The pituitary gland is a small gland, located below the brain and connected to the hypothalamus. The pituitary gland regulates the secretions of hormones in the body, and hormones impact metabolism, growth and development, reproduction and urine production. It is important to note that the hypothalamus and pituitary gland are […]MaryO
- 11/2/24 – 13th Pituitary Patient Education DayWHEN: SATURDAY NOVEMBER 2ND 2024 WHERE: The Johns Hopkins Hospital Chevy Chase Conference Center, Zayed Tower 1800 Orleans St. Baltimore MD 21287. The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts. To RSVP, please email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If […]MaryO
- DefinitionsPlease note! This page is being moved from it’s original home so some of the links might not work. Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you’ll want to know. A B C D E F G H I J K L M N O […]MaryO
- SymptomsAching, sore joints, muscles and tendons. (may include such problems as carpal tunnel syndrome) Acne Anxiety, feeling ill at ease Anxiety, irritability Backaches, unexplained rib and spinal column fractures Below normal temperature Blurred vision Bone weakness leading to fractures Bone, joint and muscle aches, inflammation, and pains Breast tenderness Brisk reflexes Brittle fingernails, which peel […]MaryO
- Choosing the Optimal Approach for Giant Pituitary AdenomasGiant pituitary adenomas pose particular challenges for treatment. Advances in technology and understanding of the disease have greatly improved the management of these rare tumors. But experience and expertise are key to achieving optimal results. “The treatment options for giant pituitary adenomas have expanded,” says Richard W. Byrne, M.D., chair of Neurologic Surgery at Mayo Clinic […]MaryO